Children and adults in North Carolina with Down Syndrome or other developmental disabilities are eligible to apply for a Medicaid waiver to receive services. However, the waiting lists can be extremely long, potentially years. Services for developmental disabilities are not an entitlement in North Carolina, and therefore individuals with disabilities are not guaranteed any services or support. This can be a particularly important consideration for adults who have graduated or aged out of the public school system.
The Medicaid waivers are administered by local management entities (LMEs) and public managed care organizations (MCOs). Both are sometimes called local area mental health centers. Visit the NC Division of Mental Health, Development Disabilities and Substance Abuse (NCMHDDSAS) website to locate the appropriate LME or MCO entity in your county. https://www.ncdhhs.gov/providers/lme-mco-directory
We advise families to contact the LME in the area they are considering moving to for information about Medicaid and other services available. The Triangle is served primarily by the three agencies listed below.
Alliance Behavioral Healthcare Office
4600 Emperor Boulevard Durham, NC 27703
Crisis Line: 800-510-9132
Counties Served: Cumberland, Durham, Johnston, Wake
Cardinal Innovations Healthcare Solutions Office
4855 Milestone Avenue Kannapolis, NC 28081
Crisis Line: 800-939-5911
Counties Served: Alamance, Cabarrus, Caswell, Chatham, Davie, Davidson, Forsyth, Franklin, Granville, Halifax, Mecklenburg, Orange, Person, Rockingham, Rowan, Stanly, Stokes, Union, Vance and Warren
Trillium Health Resources
Trillium Health Resources manages mental health, substance use and intellectual/developmental disability services in a 24-county area in eastern North Carolina. We connect individuals and families to the help they need when they need it and are responsible for managing state and federally funded services for people who receive Medicaid, are uninsured or cannot afford services.