Prenatal Diagnosis and Resources

See Handbook Below

Happy baby smilingIf you have received prenatal test results that confirm or suggest a diagnosis of Down Syndrome, we are here to provide whatever support would be most helpful to you and your family.  Request a Prenatal Information Packet by completing this Form.

Every family is unique, so please let us know how we can best support you.  We are available on the phone or can meet with you in person at your home or in our office.   If you wish to speak with someone who has been in a similar situation, we can put you in touch with a parent who has been in your shoes.

We also have a wide variety of literature, including copies of Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome, available at no cost to you. Please contact the office and we will send information to you right away.  For immediate assistance, please call 984-200-1193 or email info@tdsn.org or complete this form.


Prenatal Resources

To help with your first steps on your journey, we offer three free, digital e-books and on-line resources that are immediately available to you, including:

  • National booklet “Understanding a Down Syndrome Diagnosis” has the latest medical and developmental information about people with Down syndrome as well as local and national resources, pregnancy options and helpful visuals and graphics. A copy of this booklet is included in our Prenatal Information Packet View a Digital Copy Here.
  • Visit our national affiliate’s website, the National Down Syndrome Congress (NDSC), for a wealth of information for expectant parents.
  • The National Down Syndrome Society’s A Promising Future Together guide is written specifically for new and expectant parents.
  • Diagnosis to Delivery: A Pregnant Mother’s Guide to Down Syndrome, is included in our prenatal information package.  available at downsyndromepregnancy.org. Includes strategies for coping with a Down syndrome diagnosis, medical guidelines for the first year, and support resources.
  • The National Down Syndrome Adoption Network provides information to birth families who may be seeking alternatives to parenting as they prepare for the arrival of their child.
  • TDSN New Parent Handbook is a valuable resource for new parents in the Triangle and throughout North Carolina that has been put together by local families within our group. It contains family stories as well as a current medical reference guide. TDSN New Parent Book