Thank you for taking time to research options that will help you provide better care for individuals with Down syndrome and their families.
We encourage you to connect families with the Triangle Down Syndrome Network for accurate, up-to-date information and an opportunity to speak with a parent mentor. Learn more about support programs for new and expectant families.
If you are caring for an individual with Down syndrome, the American Academy of Pediatrics recently published updated health care guidelines. The guidelines provide information about health concerns for individuals with Down syndrome from birth through adulthood.
“Health Care Information for Families of Children with Down Syndrome” was created in July 2013 by the American Academy of Pediatrics (AAP) and is based on the guidelines. It is a great resource to give parents and families about the special health care needs for children with Down syndrome. You may also be interested in learning about aging and Down syndrome.
It is also helpful to refer patients to a local Down Syndrome Clinic for specialized care. There are currently two Down syndrome medical care centers in North Carolina:
- Duke Children’s Comprehensive Down Syndrome Program – Durham
- Down Syndrome Center – Charlotte
For more information on the two NC clinics visit
Thank you for caring for people with Down syndrome and their families. Please support you families by connecting them with the Triangle Down Syndrome Network and reach out to us if we can be helpful.