North Carolina Down Syndrome Conference


Another World is Possible
Let us help you get there 

Saturday, November 3rd
8:30 am – 4:30 pm
Check-in 8:30am – 9:30am

NCDSC Registrant Info


Another World is Possible, however, you may need help in creating the future you want for the individual with Down syndrome in your life. Whether it is emerging communication skills, IEP goals, housing solutions, or navigating the maze of state and federal benefits, TDSN has brought together resources to make the journey easier. Topics will cover the lifespan of an individual with Down syndrome. It is never too early or too late to implement plans for a meaningful future.

Keynote Speaker 

“Is it Sensory or Behavior…and can I change it?”
Katie Frank, PhD, OTR/L 
Has anyone ever suggested your loved one with Down syndrome has sensory processing deficits? Can transitioning between activities or places be challenging? Do you find that your loved one seeks out sensory input or maybe even tries to avoid it all together? Sensory processing impacts all of us, but for many individuals with Down syndrome, the inability to control their sensory needs can impact their independence and community participation. Dr. Frank will describe sensory processing and the different ways sensory processing can impact individuals with Down syndrome as they mature. Tips for deciding if it is truly a sensory need or actually a behavioral issue will be shared. Practical sensory activities that can be incorporated daily as well as affordable equipment suggestions will be provided.

Katie Frank, PhD, OTR/L is an Occupational therapist at the Advocate Medical Group Adult Down Syndrome Center in Park Ridge, IL. She has worked extensively with individuals with Down syndrome of all ages. She has experience with treatment and evaluation as well as leading a variety of groups for individuals with Down syndrome. Dr. Frank has conducted parent training and other educational opportunities for parents and professionals as well as self-advocates both locally and nationally. She earned her PhD in Disability Studies from the University of Illinois at Chicago, where her dissertation was “Parents as the Primary Sexuality Educators for their Adolescents with Down Syndrome.” Dr. Frank has been the primary investigator on multiple research studies including individuals with Down syndrome and/or their families and has had her work published in peer reviewed journals. 

How many breakout sessions will be offered?

13 Breakout Sessions
4 Ask the Expert Lunch and Learn Topics

What are some of the breakout session topics?

Literacy Among Children with Down Syndrome
The Future is Bright…when you plan for it
What’s the big IDEA and what do I need to know
Hot Topics for Health Management in Down Syndrome
Grandparents’ Guide to Down Syndrome
Transitions happen whether you are ready or not…be ready
Creating Your Future Empty Nest

What about lunch?

You are invited to join the experts for an informal conversation, visit with exhibitors, and network with other participants.  Lunch will be provided, including vegetarian and gluten-free options.  Please make your own accommodations for further dietary restrictions.

Who should attend?

Parents/Family Members/Caregivers/Self-advocates/Professionals/Educators*
* Exclusive Educator Series Available (10am – 3pm – Separate Registration Required)

What about individuals with Down syndrome?

Special self-advocate sessions for individuals with Down syndrome ages 16 and older

What are the sessions for individuals with Down syndrome?

Bullying: How to recognize it and tell someone about it
Healthy Together: Nutrition, Exercise, and Health Promotion for individuals with Down syndrome
Social Skills for Community Participation
Lunch Provided

Where is the conference taking place?

Northern Wake Tech 
6600 Louisburg Road 
Building E 
Raleigh, North Carolina conveniently located off 540 
Ample parking 

What is my investment?

$50 Registration
Online registration ends Wednesday, October 31st
FREE for individuals with Down syndrome and their support staff
Individuals with Down syndrome ages 16 and older must be able to work in a small group setting.
Support staff are encouraged to attend to assist the self-advocates in their participation.

Lunch is included

How do I register?

       Online Registration is now closed. Onsite Registration will be available starting at 8:30am on 11/3/18. Depending upon attendance, lunch may not be guaranteed for those who register on the day of the conference.