Down Syndrome Advocacy Day

Calling All Members of the Down Syndrome Community

Photo Credit: Shelly Booker

Triangle Down Syndrome Network invites you to

Down Syndrome Advocacy Day

Tuesday, June 5, 2018
10 a.m. – 2 p.m.

North Carolina General Assembly
16 West Jones Street
Raleigh, North Carolina

Statistics show that one in five Americans have a disability. Individuals with disabilities are the country’s number one minority group but also the country’s most under-served and under-represented population. State legislators are responsible for creating policies that impact every aspect of our lives. Unfortunately, by not having adequate representation when decisions are made, individuals with Down syndrome are not often considered.

It is up to advocates in the Down syndrome community to help legislators be better prepared to represent our interests when crafting legislation. Down Syndrome Advocacy Day is a perfect opportunity to share your knowledge about Down syndrome with elected officials in the state capital.

There are two simple requirements for participating:

1. A passion for improving the lives of individuals with Down syndrome; and

2. A willingness to share your successes and challenges as they relate to Down syndrome.

Registration is required. 

  • No experience is necessary.
  • Online training and resources will be provided.
  • Speak with state senators and state representatives.
  • Distribute information packets.
  • Advance registration is required.

Families, babies, children, and self-advocates (individuals with Down syndrome) are encouraged to attend!

TDSN had 60 advocates from 10 counties participating in the first Down Syndrome Advocacy Day at the North Carolina General Assembly. Advocates met with legislators and toured the legislative building. ABC 11 spent the morning with TDSN and our families and provided great coverage and you can watch the news story here.

If you plan on joining us this year please register on the link below:

Register Here


How to prepare for Down Syndrome Advocacy Day:


Advocacy 101


Map of Downtown Raleigh

Where to meet

This winter, NC legislators held the Intellectual & Developmental Disabilities Legislative Research Commission (IDD LRC) to study services pertaining to post-secondary education and employment for individuals with IDD.

The LRC’s Report included several pieces of proposed legislation that have been filed in both the House and the Senate. The bills have been moving through committees and if passed, will have a great impact on the lives of individuals with Down syndrome.

State as a Model Employer/IDD

IDD Data Sharing/Longitudinal Data System

ABLE Act Changes/Study

Oversight IDD Employment/Education Programs


If you are unable to participate but would like to DONATE please click here!

Donna Beckmann
Triangle Down Syndrome Network